I'm not sure why I'm getting all excited about this since I've got to clear a huge hurdle to get chosen for the program. And there's no guarantee even if I get accepted that they will be able to diagnose me.
But I just think it's so cool that there's a program like this for all the medical mysteries out there. (And please, President Obama & Congress, don't cut its funding!)
Anyway, I wanted to share a link to a New York Times Magazine article about the program (featuring an Oregonian no less!) that was published back in February. I'm shocked none of my relatives or friends saw it and pointed it out to me back then, but thanks to Shiri for telling me about it in the comments of my last post! (Note, you may need to register with the NYT to view the article on the website, but it's free.)
OTOH, after reading the article, I suspect I'm not nearly sick enough to qualify for the program. But that's OK. I like knowing it's out there, and I'll bring the information about it to my internist next week and see if she thinks I'm worth offering as a candidate to the NIH. (I wonder if my rheumatologist would go on the record as saying that perhaps I've got a previously unknown/undiagnosed disease and that's why they're having trouble figuring out what's wrong with me and how to treat it.)
Extreme Fatigue - Exhaustion. Fatigue. Lethargy. Weariness. It's so much more than just being tired... And it hasn't been this bad in a very long time... it's so intens...
5 months ago