I don't like being on Prednisone.
That seems to be a pretty universal sentiment, even among people who get great relief from it.
When my internist put me back on Prednisone last week, she gave me a recommended taper schedule but said I could play with it as seemed appropriate. And I did: I spent just two days at 40 mg/day before going down to 20 mg, which I correctly guessed would still be enough for me to feel benefits.
The problems with Prednisone are many. My main ones (currently) are that it makes me jittery without improving my energy levels, and it seems like it might be irritating my stomach. I don't seem to get the killer mood swings as long as I stay below 60 mg/day, but I'm definitely a bit more emotional even at smaller doses.
Since my stomach has seemed irritated, I thought maybe I'd try going down to 10 mg/day, which was the dose that Dr. T hoped I could stay on as a maintenance level.
And of course my joint pain has returned. Not as severe, perhaps, as it was before starting the Prednisone. But my experience has been that once it starts coming back, it just picks up speed until it's back full force.
So now I'm trying to decide if I should go back up to 20 mg/day, which I think is what Dr. T would tell me if she weren't in Maui on vacation. I wonder if I'd given my body longer at the 40 mg/day dose, if that would have made a longer-term difference. (It hasn't in the past, but who knows what it would do this month? Even getting any relief at 20 mg/day is relatively new.)
I hate being a medical experiment, even if I'm the one running the lab.
Demolition of the master bathroom floor is already completed! Can't wait until we've got a new floor put in there too!
Whew! - This has been me all summer :-/ *Thank God for air conditioning! *
3 months ago