While browsing on MedHelp, a site where patients advise and support other patients, I found a reference to Immune Deficiency Foundation, an organization I hadn't come across before.
It's got a lot of good information on it on a variety of immunodeficiencies. I even found the best resource I've come across yet on IgA deficiency, which is something I have. I plan on printing it out and taking it to several of my doctors. I found it especially interesting that IgA deficiency is associated with autoimmune diseases like lupus, but also with a variety of gastrointestinal problems.
Makes me wonder if maybe my IgA deficiency will eventually help pull together a name for my mystery illness.
9 months ago