tag:blogger.com,1999:blog-3749687802138692392.post3611907993451688609..comments2023-05-31T01:45:02.663-07:00Comments on Sick Momma: What's In A Name?Avivahttp://www.blogger.com/profile/16411667763810131618noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3749687802138692392.post-8548015927516993332009-07-01T10:52:29.568-07:002009-07-01T10:52:29.568-07:00I traveled around the U.S. recording conversations...I traveled around the U.S. recording conversations with young adult cancer patients for my book <br />Everything Changes: The Insider's Guide to Cancer in Your 20s and 30s. In Alabama I met you young woman who tried to get a diagnosis for two years and everybody thought she was a hypochondriac. When they finally found the football sized tumor in her chest she cried with relief. "Oh, finally they found something that they will take seriously," she replied.<br /> <br /><br />During my path to diagnosis I quickly learned how much it sucks to be told that nothing is wrong with you and that you have a disease that is not real. I don't wish cancer on you, nor do I envy you for having to live with a disease that nobody takes seriously. It is just so wrong. <br /><br />Great post. Nice to find your blog on Patients for the Moment - feel free to check out/ link to mine.<br /><br />Best,<br />Kairol<br /> http://everythingchangesbook.com/Kairol Rosenthalhttp://everythingchangesbook.com/noreply@blogger.comtag:blogger.com,1999:blog-3749687802138692392.post-69854093149544345922009-06-30T21:17:41.075-07:002009-06-30T21:17:41.075-07:00Sherril: When I mentioned to my rheumy that I'...Sherril: When I mentioned to my rheumy that I'm already on Cymbalta and wouldn't it have helped some if I had FM, he and his resident both shook their heads and said they hadn't seen any patients benefit from Cymbalta. :-( I'm guessing the Cymbalta ad, which I haven't seen, is pretty similar to the ads I used to see for the IBS drug (that I think has since been removed from the market) ... it's a major problem with drug makers advertising on TV, I think. <br /><br />I hope the research results trickle out soon. I know they're starting to.Avivahttps://www.blogger.com/profile/16411667763810131618noreply@blogger.comtag:blogger.com,1999:blog-3749687802138692392.post-74792220849888249522009-06-30T21:14:09.055-07:002009-06-30T21:14:09.055-07:00Shiri: Ugh on that GP! Yeah, and I'm sure it w...Shiri: Ugh on that GP! Yeah, and I'm sure it would also help if you paid him $$$ for prescription orthotics to put in those special shoes! Here's hoping we both get our diagnoses soon!!Avivahttps://www.blogger.com/profile/16411667763810131618noreply@blogger.comtag:blogger.com,1999:blog-3749687802138692392.post-40628134684213371742009-06-27T18:17:42.865-07:002009-06-27T18:17:42.865-07:00Excellent post, Aviva.
I expect it will just ta...Excellent post, Aviva. <br /><br />I expect it will just take time and research results to whittle some respect out of the medical community in general. I read that the same has happened with other diseases like lupus and MS; they do have credibility now that we know more about them.<br /><br />What's really irritating me currently is the Cymbalta commercial that's airing constantly in my area where at the end they say 'if you suspect you have Fibromyalgia, ask your doctor about Cymbalta.' Forget about being actually diagnosed!<br /><br />This from (heavy sigh) a person diagnosed with FM in 1989 - one year before the American College of Rheumatology even came out with the Diagnostic Criteria. At least back then nobody (including me) had ever heard of it so nobody had an opinion. I was just glad to have a name for what was wrong with me.Sherrilhttps://www.blogger.com/profile/06898319570225926653noreply@blogger.comtag:blogger.com,1999:blog-3749687802138692392.post-81456705564904421742009-06-26T14:33:46.279-07:002009-06-26T14:33:46.279-07:00Yes. Yes, yes, yes, yes, yes. Did I ever tell you ...Yes. Yes, yes, yes, yes, yes. Did I ever tell you about the GP (with an award on his wall from Congress, by the way) who told me the pain in my feet (and legs, and hands, and oh, body-wide) was because I wasn't wearing the right shoes? The right shoes?!<br /><br />Right, not RSD, but the wrong shoes. Clearly, I'm drug seeking, because drugs like Lyrica are just so much fun.<br /><br />I didn't realize I was still bitter. Point is, yes, I'm with you. Now if only I'd have some kind of test result that would confirm something....Shirihttps://www.blogger.com/profile/07536774062044836025noreply@blogger.com