I know people mean well when they tell me how good I look and that it must mean I'm feeling better.
But really, are so few people familiar with the concept of an invisible chronic illness?
You know it's bad when I was happy for my internist to greet me today with, "You look awful -- you're pale, you have dark circles under your eyes, you look exhausted!"
My reply? "Good! I'm glad I look as crappy as I feel!"
I told her about the glucose tolerance test, and she said my incredibly low result means I have functional hypoglycemia. Which doesn't really mean much because I've been diagnosed with hypoglycemia on and off since college. I already know that I need to eat frequent smaller meals and always have extra (healthy) snack food around for those times I'm unexpectedly long between meals.
Meanwhile, I have an EMG (nerve conduction test) with the new neurologist on Friday in the continuing effort to figure out the cause of my weird sensory issues.
*I went to a kid birthday party on Saturday and a mom I hadn't seen since last June told me I was glowing. I wanted to (but didn't) tell her that the last time someone told me I was glowing was when I got contaminated at the Hanford nuclear reservation in the mid-90s. (Which actually did happen, although they called it "crapped up" rather than contaminated.)
Extreme Fatigue - Exhaustion. Fatigue. Lethargy. Weariness. It's so much more than just being tired... And it hasn't been this bad in a very long time... it's so intens...
6 months ago