I'm still learning how to be successful at travel, but I have learned a few things that make a huge difference for me:
- Staying at a hotel like Embassy Suites that has a separate area from the bedroom means Ellie and Scott can have a home base to watch tv and/or hang out while I'm still sleeping. It's crucial that there be a door to shut between the two rooms. If we only have a regular hotel room, it means either I'm awake way earlier than my body can cope with or they have to get up and have somewhere to go. And having somewhere to go around 6 or 7 a.m. can be challenging most place. (It wasn't a problem at Disneyland, though. :)
- Plan for naps. Although I don't nap daily at home, I always have quiet time. On vacations, it's a lot harder to find quiet time, especially when you're traveling with a kid. Naptime makes it all possible.
- Don't over commit. I find this most challenging when we're visiting family and there's people who want to spend time with us. I find that the larger the group, the more tiring it is to spend time with them and increased fatigue makes many of my symptoms worse. It's really hard to say no, but it's crucial.
- Eat regularly and keep healthy snacks available in the hotel room for when going out in search of a meal isn't an option.
- Schedule downtime for after the trip, even if you don't expect to need it. I always need it, but I don't always realize ahead of time how much I'm going to need it. Even a low-key weekend trip takes more out of me than being at home.
Meanwhile, Deb also pointed out a great travel blog called Travels With Pain, which has many, many articles with some great advice for people with chronic illnesses. Here are two that I'd like to share: Five Ways To Make A Trip Less Painful and Taking a One-Night Trip.
So this was definitely not the most popular edition of Patients for a Moment that I've hosted, but I'd love to hear tips and travel stories from other spoonies in the comments if you have any you want to share!