Thanks to my friend, @hyperchondria, I discovered an advocacy group I hadn't come across before: The American Autoimmune Related Diseases Association (AARDA).
I was browsing the AARDA website and came across a bullet item on its facts page that made me roll my eyes and chuckle: "Studies have shown that patients who understand their illnesses follow their treatment plans better than patients who are uninformed about their illnesses. Also, they experience less stress, which is a known contributor to worsening autoimmune diseases."
Because of course I'm uninformed about my illness(es) since I still don't have a solid diagnosis. And having a mystery illness definitely contributes to my stress levels, and isn't it just unfair that stress can contribute to worsening of my illness?
It just makes me laugh, but not in a positive way if you know what I mean.
Anyway, I plan to try to contact them in the next few weeks. They have a patient education person who apparently can give referrals and I figure they might be able to help me (and my doctors) figure out what's going on with my body. Or something.
9 months ago